A groundbreaking study by the Office for National Statistics has revealed the substantial financial and professional impact of endometriosis on women’s lives, highlighting the long-term consequences of the condition on employment and income.
The research examined the earnings of employed, self-employed, and non-working individuals, uncovering a notable decline in income following an endometriosis diagnosis. In the first three months after diagnosis, women’s monthly earnings dropped, later returning to pre-diagnosis levels for up to a year. However, within four to five years, incomes fell again, averaging a £130 monthly reduction.
For those in traditional employment, wages declined by approximately £56 per month within five years of diagnosis. The study suggests that women may be shifting to lower-paying roles or reducing their working hours due to the condition’s debilitating effects. Additionally, the likelihood of remaining in paid employment decreased by 2.7% post-diagnosis.
Endometriosis is a chronic condition where tissue similar to the lining of the womb grows outside the uterus, causing severe menstrual pain, fatigue, digestive issues, and significant physical, mental, and social challenges. Affecting around one in ten women, many remain undiagnosed for years. The Royal College of Obstetricians and Gynaecologists (RCOG) reports that over 760,000 individuals are currently awaiting gynecological care in the UK. Their findings also indicate that more than three-quarters of those on waiting lists experience declining mental health, while over two-thirds struggle to perform daily activities, including work.
Dr. Ranee Thakar, President of the RCOG, expressed deep concern over the findings: “These statistics are staggering. It is unacceptable that women are forced to reduce their working hours or leave employment altogether due to inadequate access to gynecological care. The government must prioritize women’s health and invest in gynecological services to ensure timely diagnosis and treatment, allowing women to remain active in the workforce and society.”
A contributing factor to the initial income drop is the diagnostic process itself, which requires a laparoscopy—a surgical procedure that necessitates time off work. Although surgery can provide temporary relief by removing endometrial tissue, the condition often recurs.
Endometriosis UK estimates that one in six women with the condition ultimately leave the workforce. The charity’s chief executive, Emma Cox, emphasized the urgent need for employer and government support: “No one with endometriosis should have to fear job loss, career limitations, or workplace discrimination. Employers must foster understanding, challenge misconceptions about menstrual health, and create supportive environments to retain talented employees.”
As awareness grows, advocates continue to push for systemic changes to improve healthcare access and workplace accommodations for those affected by endometriosis.
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